Saturday, October 3, 2015

Happy 4th Birthday Landon

Dear son, 
As you blow the candle on your cake, always remember that your love is like a candle that will forever burn in MY heart. The day you were born was a day to celebrate, music refused my world; and without music, life would be a mistake--you have been one of the best additions to my Life.  
I love you so much! 
The Birthday Boy doing what he loves, eating CAKE!

Happy 4th Birthday!





Monday, August 3, 2015

Bike

The face you make when you're heading home with your babies BIKE!
This was taken at PT...
Finally....we got Landon's very own Rifton Adaptive Bike!!





Sunday, May 10, 2015

Happy Mums Day

Wishing a Uber Super MUMS Day to ALL of My Super Mums in the field!!!




I hope your day is filled with Smiles, Joy & lots of Heart-Warming Laughter!!!

xoxo,
Landon's Super MUM

Friday, May 8, 2015

Teachers Appreciation

Here's a Special Poem to all the Teachers, Educators, Educational Aides & Assistants, the School Overseers and last but not least, all the Special Education Coordinators & Service Therapist who assist regularly with advocating and assuring our babies are receiving the best beneficial education and service they need. These jobs aren't never made easy and most are overlooked--but today and daily I SALUTE ALL OF  YOU!!!

Happy Teacher/ Educators Appreciation Day!

A teacher is like Spring,
Who nurtures new green sprouts,
Encourages and leads them,
Whenever they have doubts.

A teacher is like Summer,
Whose sunny temperament
Makes studying a pleasure,
Preventing discontent.

A teacher is like Fall,
With methods crisp and clear,
Lessons of bright colors
And a happy atmosphere.

A teacher is like Winter,
While it's snowing hard outside,
Keeping students comfortable,
As a warm and helpful guide.

Teacher, you do all these things,
With a pleasant attitude;
You're a teacher for all seasons,
And you have my gratitude!
 --Joanna Fuchs

Saturday, May 2, 2015

March of Dimes - Year 2

This years walk was Great and the weather was nice! 
Filled with support from our Team LRG Family, as always.

Here's a few pictures...

Us w/Auntie Streamer the Clown & The Ninja Turtle!




Trying to get Landon to say Hi to the Ninja Turtle, of course he wasn't having it..
And we're starting...Team LRG!!
Say Cheezzz...

Mommies Boy...always holding my hand!
Auntie always Cheezin!
The Marshall's & Baby Ahmir joined us!
MaMa & Zoey walking it out!
Landon excited his Pal Zoey was there!
Usies!

Landon finally warmed up...we're just about finished!


Hahahaha...the Landon laugh!
And where DONE!

Saturday, April 18, 2015

The New Gumps Are In

Well here they are....the new GUMPS are in and are in full motion now!!
My Lil Gump...with his "I GOT THIS" walk...
We went in for an appointment back in March, to see if we could have the strap fixed on the the current AFO's and coincidentally he ended up being evaluated for some new ones (Noddle AFO).
 3/16/15
These were recommended to assist with less foot drop, provide more durable flexibility for strengthening and to ffacilitate heel to toe weight transfer with weight bearing.

Of course I'm always for any and all equipment to assist with his progression but in all truth I'm thinking, "really right when its about to get HOTT; in my best Landon voice--just being honest. However the thought was quickly replaced with well at least this should be easier to find shoes considering the bottom was flat and not "heeled" as my niece Laeh says.

4/9/15
After the consideration was final they did the measurement and casting. He actually seemed to enjoy this part, maybe since he's probably used to it by now. But he sat still and was just checking out the cast being build around his leg, which of course makes things easier for all of us. 

After the casting was finished we were able to get the strap fixed on the current AFO's. 

Pick up day had arrived and he seemed to be lest interested in putting them on, and was quite angry that he had to leave with them on. 

Luckily he was able to get a good ole' break in on the full first day. He went out with Dad & Big Sis DaMari and was WALLKINNGGG!!! They even made a stop at the book store which of course I was told he lost his mind in there trying to pick up so many books for them to read him. Check him out..

Seems the new GUMPS made an excellent day great!
ummmmm...which book should I get??







Monday, April 6, 2015

Our Easter Monday White House Visit

Let's see where do I start....???

Well how about I'll start out by saying I have been registering to get tickets to the White House Easter Egg Roll (and Christmas Lighting) since I've become a mother, and I've never been lucky enough to win. This year however I was lucky enough to receive some tickets from a family member who wasn't able to go--so in my mind I/We was WINNING!!!!

This was taken while we were siting on the
 grass waiting in line.

I planned on making it a nice mommy & kids outing, whelp until Anesia decided to ditch us, as she always does. Thus it ended up being just me, Landon, Raziah (my God-daughter) and my mom. We were all super excited, of course with the exception of Landon considering...but I was holding down his excitement.

The day started out a bit late; I guess its safe to say as usual--but this was totally my moms fault (yup she's the blame). Since we ended arriving late we missed meeting up with our family which caused us to missed our time to get in, because our tickets was with them. We had to end up waiting for the next group to go in, which in all was about 1.5-2 hours almost. And of course this would only effect Landon's behavior and it did just that. He started whining, maybe from sitting in the stroller, I don't know, but it seemed like the closer we got the more irritable he became.
This was the best group picture
we were able to get...and check him out...
Eventually he ended up falling asleep right before we where set to enter the actual grounds. But once we went through he woke up and all ____ broke lose. He starting screaming & kicking and was just in a total uproar, after becoming a tad bit aggregated I just found us a tree to seat under, parked the stroller and took him out. And of course I didn't have any snacks in the bag since no food was permitted. I'm not sure if it was too many people, him still tired, hungry or what the case was. However it appeared once he was out and had stopped crying he had more fun pulling the grass out the ground which I told him he was going to get in some serious trouble for doing that by
President Obama and First Lady Michele!
This was our "Cop A Squat" moment!
Needless to say the experience was memorable, although we didn't get to see The Obama's, him having a complete meltdown it was a beautiful day filled with lots of people & plenty of kids dressed in their best Easter Monday outfits surrounding the grounds. I was so glad my mom went with me because Raziah would have been very disappointed with me because I wasn't able to take her around to do nothing--but she had fun with my mom taking her around to the different obstacle courses, they even did yoga out there.

In ending by the time we decided to head out he became calm and wanted to walk and run around, so I let him do just that.

Sunday, April 5, 2015

Happy Easter

Wishing All of OUR Viewers A




True Story...


So Anesia put her ear buds in his ears yesterday for him to listen to the music {as he has become frequent to following her around the house to listen to the music} and today this was him doing it himself!!

I ABSOLUTELY ADORED capturing this moment!!!

I call this his "please don't stop the music" moment; only if it were playing.
BUT I'm sure he was jamming to his own melody.






"Music is a therapy. It is a communication far more powerful than words, 
far more immediate, far more efficient".
--Yehudi Menuhin

Saturday, April 4, 2015

More WORDS Are Here

Bus! Duck! Book! Me! Pete! Truck! Hot!

These are words that Landon has been using quite frequently and has been using them correctly!!

He yells BUS when he sees the school buses at school; DUCK when he is watching tv, reading or sees a bird (he was close); BOOK when he prompts you to read to him; ME when he is reading Brown Bear Brown Bear;  PETE when he is watching his favorite show; TRUCK when he sees it on a book and of course everything can be HOT!

 I'm certain the question is who is Pete by now? Well Pete is from his favorite cartoon show Mickey Mouse Clubhouse. I take that was easier to pronounce then Mickey.

Here's a video of him having speech therapy and reading his favorite book
 "Brown Bear Brown Bear".




Here's another one from Occupational Therapy. Check out his coordination is improving.



“Never discourage anyone...who continually makes progress, no matter how slow." 

 -Plato




Thursday, April 2, 2015

Lets Light It Up Blue

As it's known "LIGHT IT UP BLUE" is annually observed on this day to dedicate 
raising awareness for Autism.

This is how we represented for LIUB!!!!! 


I say lets cheese for LIUB--
instead he gives he his mugface!
Landon and one of his Fav's Ms. Dinkins...
check out there celfie game!

Of course I had this created by Fern from
Valent Enterprises;
the best online graphic designer!

Share with us how you showed love by posting your comment below
 or using #TeamLRG #LIUB #MARCHH on your social media platforms and tagging us
on Instagram @ we_are_m.a.r.c.h.h!!


Wednesday, March 18, 2015

Blah..Blahh..Blahhh..BYE!

Landon's ST shared this video with me; taken during his session today.

Check my baby out, he is talking on the phone!!!




These moments of progression makes my heart MELT!!!
I told her he has been picking up the phone lately making babbles, sounds and a few clears words at times.

I titled his Blah..Blahh...Blahh since I cant make any other words out, except his all time favorite BYEE!!

Thursday, March 12, 2015

His Way or NO Way

This post is nothing short of a TICKLE and ASPIRATION!!!

I'm simply welcoming you to view things this guys does in the house, amongst making other funnies and/or mess. If he's not back and forth in the bathroom playing in the water,  hiding toothbrushes, throwing legos in the toilet, pulling qtips & cotton balls out the linen closet, or even pushing & pulling Chloe off her pillow you will be sure to find him here throwing all the clothes out the laundry basket.



Although at times it can be overwhelming knowing I have tons of mess to clean up, it quickly reminds me of how much he is progressing. Then at that moment I allow him to continue!

Welcome to our lives Living in Landon's World!

"Our minds are as different as our faces: we are all traveling to one destination - happiness; but few are going by the same road".
-Charles Caleb Cotton



In other NEWS guess who made Student of the Month again!!! 

Debut in February's Hall Of Fame

Sunday, March 1, 2015

We Rocked' RARE Day

As we know yesterday was RARE Day!

Thousands of individuals with a RARE Genetic Syndrome, parents, families & friends, and organizations celebrated this day in some way. Since we did our first impromptu celebration at Chuck E Cheese's last year I figured we could make it a tradition and return for our RARE festivities--so that we did!


Of course I was excited and took the liberty of making reservations early, started spreading the word, sent out invites and requested they arrive in their best denim gear. I even went far as having a cake made and making some cool RARE treats (which I got the idea from a friend).








I figured I'd have reserve our party for the latest time so we could tired our babies out in a good fun way. And when I say it turned out to be an Incredibly Awesome RARE-filled evening with family, friends, Landon's teacher & her family and one of his classmates as they all joined us--believe me it was.

This is how describe RARE as it relates to Landon....
Ridiculously Handsome
Awesomely Cool
Rottenly Spoiled
Excelling Daily
#whatsyourRARE


I swear it never goes a day where I'm ungrateful for the pouring amount of Love, Support, Generous words of Comfort & Prayer we receive for Landon. I always want it to be known, it never goes unnoticed!!!

Thank You! Thank You! Thank You! For Celebrating RARE Day with us!
Much Love,
Team LRG


"We may be RARE; but we've got ROAR"
-Julie Flygare

Saturday, February 21, 2015

Confessions 101

I thought it was time I shared one of my confessions of being a special needs mom--

After everything else we were trying to find answers to here comes an adaptive brace recommendation; initially it came from his second physical therapist before he started going to Easter Seals, when we had home sessions. She recommended them to support his ability to attempt with standing correctly and obtaining proper balance.

Stomp the Yard!

That also came with a helmet recommendation since he was banging his head (which he still does), however he surpassed that requirement.
The braces was again recommended from his new physical therapist once he started at Easter Seals, which this time around we actually went through with an evaluation, fitting, insurance clearence and actually revieving the first pair {SMO SureSteps} in June 2013. And recently received a second pair in September 2014 {AFO}. The struggle has been even harder purchasing shoes to fit correctly, asthese have a bit more of a heel. It requires a size up, removing the shoe padding and most importantly putting some thick socks, preferably dry fit as they cause his feet to sweet ridiculously. And unfortunally Ive notices it also keeps his feet peely if there not moistened enough. Luckily after some research and personal experience New Balance has alwaya been the best choice of shoe for his braces, with Adidas also being a great pick. There are some shoes Ive been able to purchase from different labels/stores that fit well too; such as Target, Old Navy, Gap, Childrens Place, H&M, Crocs, & Sperrys. But even after finding them I always have to try them on and have him walk around to confirm there good.
I need to find a repurpose project with the shoepads!
 The most important part is assuring the shoes has actual shoe strings and not them stretchy strings, making sure the shoe is capible if being bent up for wigglying his foot in, picking wide for width if possible and that the pad can be removed without completely ruining the shoe.

Today was a shoe-tastic finding day because I found two pairs in target for $12.99 (awesome bargain right) with one of them being a pair of winter boots as I wasnt able to find some before, our experience with timberlands last year was very dufficult and timly putting one. And as I mentioned the current brace has a stepper heal. Needless to say both of the shoes purchased today fits swell!


Shoe Take 2!
So do know My Little Forest Gump will be stepping and stomping in his new kicks next week; unfortunately shoes dont last long before crunch times sinks in which is my reason for buying more then a few at one time to give him options.

In ending this post do know this was not a post of complaining because while this is sometimes a bit overwhelming to me, there are other special need parent(s) that have more worries then finding shoes to properly fit a brace. This was just one of My Confessions of our journey.....trust, there will be more.



"As you begin to realize that every different type of music, everybody's individual music, has its own rhythm, life, language and heritage, you realize how life changes, and you learn how to be more open and adaptive to what is around us."
Yo-Yo Ma

Wednesday, February 18, 2015

Lets Go! Step!

This video gives ME Life!!

It may be much of nothing to some, appear to be just a kid walking up the steps. But to ME, this kid of mines is effortlessly making such tremendous progress. Each day he is showing his ability and determination to battle his disabilities. Its one thing to hear he's done something but to see it gives me pure happiness.



While writing this post I happened to look up to my right where my vision board is, and the first thing that stood out was the Serenity Prayer. Oddly enough this is my most favorite prayer; yet it defines My Landon in so many ways.

"God grant me the serenity to accept the things I cannot change, 
the courage to change the things I can, 
and the wisdom to know the difference"!

His serenity, courage and wisdom speaks louder than words itself--and for that I, We, He is Gracefully Blessed, amongst the Best!


I hope this video fulfills your heart as much as it has mines!

Signed,
Mommy of an Achiever

Saturday, February 14, 2015

My Funny Valentine

Happy Valentines Day!!

Landon & I got a early start on our morning today, we attended the Valentines Party at HSC with Kids In Action.

We arrived a tad bit late but in good timing; it was still lots of families and plenty of kiddies there. After getting settled and comfortable as we started walking around; there was an indescribable feeling of overwhelming joy that came upon me with being a in a room full of special needs kids. Just seeing their differences, how they interacted with the other kids, and how their all adored equally as if they were just normal children--because they really are. 
Oh how my heart just melts away observing and digesting it all.

However this time around Landon isolated himself from the other kids, he focused more on the visualized things around him, such as, pictures on the wall, textures and some of the craft tables.
His OT shared this video with me from Thursday.
See he's making his Mommy a Valentines Card!! 

Although he became very resistant and fussy when I tried directing him to make some crafts. He seemed more happier just walking and venturing throughout the room, so that I allowed him to do.

In all I enjoyed the morning with My Funny Little Valentine!! 


"Sometimes even the greatest joys bring challenge, and children with special needs inspire a very, very special love."

Tuesday, February 10, 2015

A Little February Funny

I have a little funny to share....which is honestly a BIG Funny to Me!

So Landon knows how to open the all the doors in our home, with the bathroom being his favorite pick of course, considering he knows how to turn the water on. Most times I go in after realizing his in  there get him out and sometimes I allow him stay just to play in the water. Lately while in the bathroom he's been taking his /our toothbrushes out playing with them, sometimes he'll sit on the edge of tub and brush his teeth.
Cuaght red handed!!!
Taken 1/17
However yesterday he did all of this but this time I noticed he had Anesia's toothbrush in his hand this time. I remember seeing him brush the dresser {yes my newly resurfaced dresser} and me telling him to give it to me, but then after that draws a blank.

Needless to say this morning I remembered when I went to brush our teeth and I told Anesia to get a new one because Landon had it last. She went to ask him "Landon where is my toothbrush",  he replies with a "hummm", she says again, "Landon wheres my toothbrush",  he replies "MaMa" and burst out laughing!
Caught again!!! Messing!
Taken 2/8

Of course I did too--so shes like Ma, stop laughing its not funny he probably put it in his pot or the hamper--as the hamper has also become his go to place to get into something. He pulls all the clothes out then throws something else on there.

Ohhh boy I'm still laughing! I told her that might be your karma for always blaming stuff on him,  knowing he can't speak to defend himself; payback is something!

This is one of many funnies that bring JOY to us!! Although he can't talk like a normal toddler his age, its clearly obvious he understands well.

Currently all his words/sounds are:
"MaMa, Ba-by, Bye Bye, B-B, Hummm, DaDa"

His teacher often says he says or makes new sounds but I havnt actually heard any just yet.

#TheseKidsGiveMeLife
#LifeWithLandon

~So many tangles in life are ultimately hopeless that we have no appropriate sword other than laughter.~
Gordon W. Allport

Tuesday, February 3, 2015

February is RARE

As it seems this the month of RARE--think about it like we have leap year every 4 years. This is also the month to share & acknowledge people living with a Rare Genetic (Disease) Syndrome; as I prefer to call it (disease sounds nasty & scary--just my opinion).

As we know there is so many different syndromes and diagnoses that have been considered  rare that are celebrated on this day.

What is RARE Disease Day?
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

What is a RARE Disease? 
A disease or disorder is defined as rare in the USA when it affects fewer than 200,000 Americans at any given time.
  • 50% of rare diseases touch children.
  • Kleefstra Syndrome has about 300 cases worldwide

For more information on RARE Day visit www.rarediseaseday.org 

For more information on Kleefstra visit http://kleefstrasyndrome.org 

Saturday, January 24, 2015

It's Our ANNIVERSARY

WOW!!! How does time fly?? 

It's been 2 years now that I've been blogging about Landon's journey. But I must say, it's one of my most soothing outlets. Not only do I enjoy sharing with the our family, friends and readers how Landon is developing, progressing and currently expressing himself as a toddler; but also proving that any parent can still enjoy being a parent in the word of difference. 

Not only is today The Anniversary of LandonsLeap, but it's also My Birthday! On this very day I decided to publicly share My Thoughts, Landons's progress and how we're living day by day with our Special Blessing.

Here's to LandonsLeap!!! Happy 2nd Blogiversary!




“Every time you post something online, you have a choice.
You can either make it something that adds to the happiness levels in the world—or you can make it something that takes away.

--Zoe Sugg






Friday, January 23, 2015

Total Transporation Experience

Today for the first time we used transportation through HSC. I knew we had the opportunity to use it but since I my own personal vehicle, it was never needed. Recently when our case manager from HSC came for an introduction visit I inquired about it, since at this time I no longer had my personal vehicle.

The experience was comfortable and satisfying; the only thing that was unclear was what kind of vehicle I was expecting, if we should be outside at the requested pickup time, if the driver or a dispatcher would call us to say they were in route.

Landon & Mommy Selfie
{while in the transportation vehicle}
Nevertheless I ended up calling too see what to expect and was informed the driver would call when in route and when they were outside.

Coincidentally when we headed outside the driver was standing at the door and as made eye contact she asked if we were Loki g for transportation. She then stated, "I know him, I picked him up before", "I replied no", she says, "are you sure", I reply again "I'm certain this is the first time were using transportation". So come to find out after we went back and forth she recognized Landon from transporting to Easter Seals.




Check out how he likes to hold my hand while we ride!
After we figured were she knew him from that eased me just a little knowing she took the time to remember someone she actually never transported, but yet paid so much attention to.

The ride was not only comfortable but complete. We arrived in good timing and the driver called when she was in route to pick us back up, while the ride home was lights out for us both.

Needless to say we will definitely be requesting transportation from here on out!




"The only source of knowledge is experience"

Thursday, January 1, 2015

Happy 2015

Greetings!

Wishing the New Year comes to give you FRESH hope. 

For a better Future and Success.
New Year gives us all Dreams for that we will face challenges with Confidence. 
In this New Year may your Dreams and Hopes succeed with the Blessings of God. 

Happy New Year! Happy 2015!


#throwsconfetti


With Lots of Love,

Team LRG




"Every time you tear a leaf off a calendar, you present a new place for new ideas and progress." 
Charles Kettering