As we know yesterday was RARE Day!

Thousands of individuals with a RARE Genetic Syndrome, parents, families & friends, and organizations celebrated this day in some way. Since we did our first impromptu celebration at Chuck E Cheese's last year I figured we could make it a tradition and return for our RARE festivities--so that we did!


Of course I was excited and took the liberty of making reservations early, started spreading the word, sent out invites and requested they arrive in their best denim gear. I even went far as having a cake made and making some cool RARE treats (which I got the idea from a friend).








I figured I'd have reserve our party for the latest time so we could tired our babies out in a good fun way. And when I say it turned out to be an Incredibly Awesome RARE-filled evening with family, friends, Landon's teacher & her family and one of his classmates as they all joined us--believe me it was.

This is how describe RARE as it relates to Landon....
Ridiculously Handsome
Awesomely Cool
Rottenly Spoiled
Excelling Daily
#whatsyourRARE


I swear it never goes a day where I'm ungrateful for the pouring amount of Love, Support, Generous words of Comfort & Prayer we receive for Landon. I always want it to be known, it never goes unnoticed!!!

Thank You! Thank You! Thank You! For Celebrating RARE Day with us!
Much Love,
Team LRG


"We may be RARE; but we've got ROAR"
-Julie Flygare