Blah..Blahh..Blahhh..BYE!

Landon's ST shared this video with me; taken during his session today.

Check my baby out, he is talking on the phone!!!

These moments of progression makes my heart MELT!!!
I told her he has been picking up the phone lately making babbles, sounds and a few clears words at times.

I titled his Blah..Blahh...Blahh since I cant make any other words out, except his all time favorite BYEE!!

His Way or NO Way

This post is nothing short of a TICKLE and ASPIRATION!!!

I'm simply welcoming you to view things this guys does in the house, amongst making other funnies and/or mess. If he's not back and forth in the bathroom playing in the water,  hiding toothbrushes, throwing legos in the toilet, pulling qtips & cotton balls out the linen closet, or even pushing & pulling Chloe off her pillow you will be sure to find him here throwing all the clothes out the laundry basket.

Although at times it can be overwhelming knowing I have tons of mess to clean up, it quickly reminds me of how much he is progressing. Then at that moment I allow him to continue!

Welcome to our lives Living in Landon's World!

"Our minds are as different as our faces: we are all traveling to one destination - happiness; but few are going by the same road".

-Charles Caleb Cotton

In other NEWS guess who made Student of the Month again!!! 

Debut in February's Hall Of Fame

We Rocked' RARE Day

As we know yesterday was RARE Day!

Thousands of individuals with a RARE Genetic Syndrome, parents, families & friends, and organizations celebrated this day in some way. Since we did our first impromptu celebration at Chuck E Cheese's last year I figured we could make it a tradition and return for our RARE festivities--so that we did!

Of course I was excited and took the liberty of making reservations early, started spreading the word, sent out invites and requested they arrive in their best denim gear. I even went far as having a cake made and making some cool RARE treats (which I got the idea from a friend).

I figured I'd have reserve our party for the latest time so we could tired our babies out in a good fun way. And when I say it turned out to be an Incredibly Awesome RARE-filled evening with family, friends, Landon's teacher & her family and one of his classmates as they all joined us--believe me it was.

This is how describe RARE as it relates to Landon....

Ridiculously Handsome

Awesomely Cool

Rottenly Spoiled

Excelling Daily

#whatsyourRARE

I swear it never goes a day where I'm ungrateful for the pouring amount of Love, Support, Generous words of Comfort & Prayer we receive for Landon. I always want it to be known, it never goes unnoticed!!!

Thank You! Thank You! Thank You! For Celebrating RARE Day with us!

Much Love,

Team LRG

"We may be RARE; but we've got ROAR"

-Julie Flygare