Kennedy Krieger - Day 2 of 2

Day 2 arrived and this day was much longer. The first evaluation was assessed by the speech language pathologist and the last evaluation was assessed by the developmental pediatrician.

The speech language evaluation consisted on Landon interacting with the therapist to show how well he communicated. Upon entering this evaluation room, he appeared to act differently than he did on Day 1, but he proceeded with checking his surroundings and moved in-towards the therapist. The activities on this day included more fine finger grasping, self-feeding and how he feeds himself; showing signs and/or gestures to indicate he if wanted more. He also had to show interaction with a play baby and stuffed animals and imitating motions or faces made by the therapist. This evaluation ended with the therapist reviewing her testing scores by the Mullen Scale and sharing some recommendations.

Landon sitting in the evaluation room, awaiting the therapist to return.
 

Landon's favorite part of the day... EATING!! Lunch at Miss Shirley's.
Of course he isn't in picture mode, he's only ready to eat.

Upon our return back to the center after enjoying a nice lunch, Landon was triaged and had a slight physical evaluation before heading in for the last appointment of the day. Finally, we were called...

After a long intensive overview and evaluation assessed by the Dr., we were told there were definite visible red flags of autism. However she proceeded with assuring us all of Landon's delays where associated with the Kleefstra Syndrome. However she did mention this particular rare syndrome was very new to her but according to her research she was very confident there wasn’t a need to diagnose Landon with having autism. She did move forward with offering to continue assisting us with by helping us locate a pediatrician who specialized in rare genetic disorders to avoid any oversights that can be associated by this syndrome. She also requested to see Landon in one year for a follow up.

Dad & I left that appointment with such comfort and ease. We shared with her how we wished we would have come to the KKI sooner, especially considering we had become so frustrated with the back and forth we had experienced with Children's National Medical Center.

As for now, we're awaiting the final report from Kennedy Kriger and referrals for other pediatricians, meanwhile we are pleased knowing what direction we can move forward with continuing plan of care for Landon.